Informed Consent in Biomedical Research

Fida K. Dankar, Marton Gergely, Samar K. Dankar

Research output: Contribution to journalReview articlepeer-review

19 Citations (Scopus)

Abstract

Informed consent is the result of tumultuous events in both the clinical and research arenas over the last 100 years. Throughout this time, the notion of informed consent has shifted tremendously, both due to advances in medicine, as well as the type of data being gathered. As such, informed consent has misaligned with the goals of medical research. It is becoming more and more vital to address this chasm, and begin building new frameworks to link this disconnect. Thus, we address three goals in this paper. First, we discuss the history of informed consent and unify the varying definitions of the term. Second, we evaluate the current research on the topic, classify them into themes, and attend to the problems therein. Lastly, we employ these themes of informed consent research mentioned previously to provide guidance and insight for future research in the arena.

Original languageEnglish
Pages (from-to)463-474
Number of pages12
JournalComputational and Structural Biotechnology Journal
Volume17
DOIs
Publication statusPublished - 2019

Keywords

  • Biomedical data
  • Biomedical research
  • Informed consent
  • Medical care
  • Privacy

ASJC Scopus subject areas

  • Biotechnology
  • Biophysics
  • Structural Biology
  • Biochemistry
  • Genetics
  • Computer Science Applications

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